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Stem Cell Research: Canada Man Gets Help for His Multiple Sclerosis

May 28, 2009 by Don Margolis

Don Margolis's picture

Stem Cell Research Helps Vancouver Resident With MS

Canadian native, Arndt Roehlig is the latest Multiple Sclerosis patient to be helped by stem cell research. Arndt was injected with his own adult stem cells back on March 6, 2009 and since then has seen improvements in his quality of life.

Arndt, a Vancouver resident, first became interested in stem cell therapy for his multiple sclerosis when he read a story about fellow Canadian Louis Zylstra, a professional golfer who was able to return to the golf course after her multiple sclerosis had forced her to give it up.

Adult Stem Cell Treatment in Israel

Zylstra was helped after seeking stem cell research in Israel where Dr. Shimon Slavin was treating patients with their own Adult Stem Cells. Arndt saw the stem cell success story and was inspired to seek out the same stem cell treatment as his multiple sclerosis was getting worse.

Stem Cells for Multiple Sclerosis Experience

Here is the whole stem cell experience in Arndt’s own words–

“I wouldn’t call it success just yet, as I am careful not to report a reversal when it is still early.

I had a bone marrow extraction performed on me in Tel Aviv in late December, 2008. This procedure was quick and I suffered no side effects at all after my butt healed. Dr. Slavin’s team then did their magic which took approx. 2.5 months to grow the needed stem cells from my bone marrow donation. The experience then really started in Istanbul, as non Israeli citizens are not allowed to receive stem cell treatment in Israel as of yet.

I arrived in Istanbul on Friday afternoon on March 6th 2009. As I was advised to stay an additional day after my planned procedure, which was booked for Saturday, I was booked to fly home on Monday morning, thinking this would leave me plenty of time to recover from the stem cell infusion. As it turned out, it is very common to feel nauseous, have headaches and be vomiting for several days after the infusion. I experienced all three symptoms, which felt like a really terrible case of food poisoning. As I arrived, the service that picked me up stated I will be receiving the stem cells that evening, so a day early. Sure enough, as soon as I checked in to the Florence Nightingale Hospital there, I was wheeled into the radio room where the Spinal surgeon quickly administered the anesthesia into my spine, about half way up my back. Within minutes following, I received the stem cells. The whole procedure was about 15 minutes long and involved no serious pain. I was wheeled back into my room and ate dinner. That was the last food for three days, as I felt very nauseous and vomited without sleep for three days. I did hear however, another patient that received the same treatment that day never vomited, just had a terrible headache for three days, so everyone reacts differently to the treatment in terms of side effects.

Monday morning came by and I was still feeling terrible, so after another visit across the street to the hospital, I received some more IV help so I could get on the plane. As I had a layover in London for 3.5 hours, I found a couch where I actually slept for two hours for the first time in three days. When I awoke, I felt a sensation I never have had before. It felt like the whole pressure from my MS dissipated and almost like a massive weight off my shoulders, wow. Then as I got home and slept in my bed, I noticed that my usual cramps that I have at night time also went away completely. Although, I must say that the cramps did come back since then, however not as strong as they once were. My experience since then has been quite good, to date (~2.5 months since infusion), I have recorded MS attacks, however, they are no where near as overwhelming as opposed to my continuous attack prior to infusion. My masseuse (once a week treatment) reports my back, which used to be riddled full of knots and tension is now normal and soft.

As for the progression of my disease, I think the disease is still affecting me, especially I notice symptoms on my left leg may have gotten a bit worse. However, I am just as of late feeling some potential improvement in my ability to walk a straight line without dragging my right leg behind me. Also, some parts have gotten better for example, I can get my right leg into my pants while standing again. This could just be a calm part before the disease progresses, or it could be the potential of nerves growing back and hence ability is better. It is obviously still too early to say for certain, but so far I am feeling very positive and according to the stem cell specialist Dr Slavin in Tel Aviv, I am not to feel much potential in the first three months anyway.

This experience so far has given me back my life as I was suffering a dramatic downward shift in mobility just before the infusion and thus can plan my life a little bit better as compared to before the infusion.

I would so far definitely endorse my treatment and advise people to try it. There is no downside risk except for lost money. There is no chemo therapy.

I hope I explained my experience well enough and will update my experiences again in the near future.”

Best regards,

Arndt Roehlig
Email: arndt@trivello.com

If you want more details on Arndt’s stem cell research experience with his own Adult Stem Cells, please email him at the above email address.

Arndt is just the latest Multiple Sclerosis patient to be helped by stem cell research using his own stem cells. See other stem cell success stories at Stem Cell Research

Comments

stem cell research

June 15, 2009 by Anonymous, 23 weeks 6 days ago
Comment: 37277

Arndt Roe-I am intrigued by your story in THE SCIENCEBLOG. I have had MS for 25 years. I am 45 years old now and have had this disease for all of my adult life.

I would like to follow your diisease progression and also would like to inquire how much the proceedure costs.

I would appreciate any words of wisdom you can impart upon me.

Thank you,
Jane Vitelli

Stem Cell Research

June 12, 2009 by Anonymous, 24 weeks 2 days ago
Comment: 37222

I am Primary Progressive (DX 11 years ago) and have been very interested in SC transplant for some time. Do you know anything about Noerthwestern or Johns Hopkins? I would like to not travel outside the US. I am progressing very fast and may not have a choice!!

LDN a safe, cheap alternative that seems to work better...

May 28, 2009 by Anonymous, 26 weeks 3 days ago
Comment: 36898

IMPORTANT INFORMATION FOR ALL MS PATIENTS

To my fellow MS sufferers:

By way of introduction, my name is Joseph Wouk. I'm the son of the novelist Herman Wouk whose works you might be familiar with. I'm a graduate of Columbia College and Columbia Law school in NYC.

I have recently completed a book entitled Google LDN! available on Amazon and B&N. It can be read in it's entirety for free at googleldn dot com. In addition, the site has lots of information on LDN as well as three videos explaining about it ranging from seven minutes to an hour.

As posting links is not allowed on this forum, just Google the title of the book or my name and you'll find it. The hundred page appendix should have all the information you might want concerning LDN and it's operation.

The blurb from the back of the book explains my story:

______________________________
___________

Diagnosed with Progressive Relapsing Multiple Sclerosis, Joseph Wouk, youngest son of novelist Herman Wouk refuses to accept the doctor’s opinion that there is nothing more to be done for his medical condition. He plans to go to the Amazon to try to cure himself with a Shaman’s ayahuasca ceremony.

The book begins as a journal entitled, PLACEBO – A Rationalist Seeks a Miracle Cure. Wouk, a hardened western rationalist has no patience for spooks or spirits or any other new age wishful thinking. His plan is to try to delude himself with psychedelics into thinking he is cured - Thereby activating the placebo effect to cure himself for real.

He covers all the bases: From Buddhism to Judaism. From quantum physics to Gödel’s incompleteness theorem. From alternative medicine to the Metaphysics of Quality.

Told with humor and honesty, Wouk pulls the reader through his thought processes as he watches his mind dissolve from the subcortical dementia caused by his particular variety of MS.

Right before he is scheduled to leave for Peru, all his MS symptoms suddenly disappear. The only drug he was taking was Low Dose Naltrexone (LDN).

The second part of the book is entitled: LDN – Miracle Cure Found ! After his symptoms disappear, Wouk finds out that LDN has been stopping the progress of Progressive MS for 20 years. It also has been helping cancer victims, AIDS patients, Parkinson’s sufferers, and a host of other immune system related diseases.

Naltrexone was FDA approved only to treat recovering addicts. The low dose version works its magic by tripling the body’s production of endorphins. This restores the immune system to full operation; hence the drug’s ability to help so many diseases. It doesn’t fight the diseases; the body fights them once the immune system is restored. Because it is now generic, no one will spend the millions required for FDA approval.

Google LDN ! is Wouk’s attempt at Dana Paramita, the Buddhist version of Christian “good works”.

The book includes a hundred page appendix with the most up to date information about LDN and its effects on immune system related diseases.

You’ll laugh and cry through the first part of the book and be inspired by the second part.

A man who refuses to give up in the face of insurmountable odds ends up completely healed despite the hopelessness that western medicine tells him he faces.
____________________________________

Please note: Despite the literary license used in the blurb, LDN is NOT a "cure". It's a palliative which has to continue being taken for its effects to last.

I addressed the first annual LDN conference on April 25 in Glasgow and that video is available at the same site as the book.

This matter may well be the most important one to national health since the discovery of penicillin. Writing that makes me feel like a self promoting flake pushing some variety of "snake oil." That's been one of the lesser problems in getting LDN recognized for what it has proven itself over and over to be capable of. It's hard to swallow that any drug could possibly control the following list of diseases:

Cancers:

* Bladder Cancer
* Breast Cancer
* Carcinoid
* Colon & Rectal Cancer
* Glioblastoma
* Liver Cancer
* Lung Cancer (Non-Small Cell)
* Lymphocytic Leukemia (chronic)
* Lymphoma (Hodgkin's and Non-Hodgkin's)
* Malignant Melanoma
* Multiple Myeloma
* Neuroblastoma
* Ovarian Cancer
* Pancreatic Cancer
* Prostate Cancer (untreated)
* Renal Cell Carcinoma
* Throat Cancer
* Uterine Cancer

Other Diseases:

* ALS (Lou Gehrig's Disease)
* Alzheimer's Disease
* Ankylosing Spondylitis
* Autism Spectrum Disorders
* Behcet's Disease
* Celiac Disease
* Chronic Fatigue Syndrome
* CREST syndrome
* Crohn's Disease
* Emphysema (COPD)
* Endometriosis
* Fibromyalgia
* HIV/AIDS
* Irritable Bowel Syndrome (IBS)
* Multiple Sclerosis (MS)
* Parkinson's Disease
* Pemphigoid
* Primary Lateral Sclerosis (PLS)
* Psoriasis
* Rheumatoid Arthritis
* Sarcoidosis
* Scleroderma
* Stiff Person Syndrome (SPS)
* Systemic Lupus (SLE)
* Transverse Myelitis
* Ulcerative Colitis
* Wegener's Granulomatosis

I'm no self promoter and LDN isn't snake oil. In fact, if the trials bear out the experience of doctors who have used it, it could well be the best drug ever discovered for restoring the immune system to it's proper function. It does this not only for humans, but for animals as well. Dogs and cats with cancer are routinely stabilized with LDN and live long, normal lives.

Be sure to Google the study that was completed six months ago in Milan, Italy where over the course of 6 months, only one of forty PRMS patients showed any progression of their disease while taking LDN.

The Yahoo group "lodosenaltrexone" has over 6,000 members who have been, or are being helped by LDN. While cancer and MS are the two most common illnesses that LDN helps, over the past few years children with autism have shown such amazing improvement that Hadassah Medical School is beginning a study about it. When I Googled "LDN autism" just now, it returned 11,100 hits.

It's method of functioning is pretty straight forward. Naltrexone, as an opioid blocker, makes the body think it has a deficit of endorphins. This causes the body to produce 2-3 times the normal amount of endorphins. The endorphins then fortify and help restore the immune system. All this is accomplished with essentially no bad side effects.

None of this is rocket science for medical professionals today. What's somewhat different about LDN is that it doesn't treat the disease. Instead, it treats the body and then lets the body treat the disease. This is reminiscent of Homeopathy and may be another reason why LDN has failed to attract the attention of the medical community despite all the evidence.

The central reason that LDN is still unknown is no reason at all. That is, unless making money is considered a "reason". LDN became a generic drug years and years ago. On the one hand, this is good. LDN is cheap because anybody can produce and sell it. The problem is that its effects on the immune system were discovered after it had become generic. Our "for profit" system of medical care has lots to recommend it. However, in the case of a drug whose important use is discovered after it becomes generic, the system completely breaks down.

While I have no use for "Big Pharma" in general, I can hardly blame them for not investing the 30 million dollars necessary to gain FDA approval if there is simply no way they can ever recoup their investment.

This is a terrible hole in our medical system that needs to be fixed. While LDN may represent the most extreme example of the damage that can result from this "hole," it is the tip of the iceberg when one considers how many drugs are going generic on a daily basis. None of these drugs will ever be tested for new and important uses no matter how much evidence there is to justify it. The current patent law insures that a drug's approved use becomes "frozen" as soon as it becomes generic.

While many different solutions to this problem have been proposed, I believe that as long as our society continues to use the "for profit" system, the only real solution has to be found within that system. That's why I've proposed that the patent law be changed to allow for "re patenting" of prescription drugs for new and important uses.

If that law had been in place 20 years ago when Dr. Bernard Bihari discovered the effects of low dose naltrexone on the immune system, millions of peoples lives would have been saved, trillions of dollars would not have been wasted, countless hours of suffering would have been prevented, and the continent of Africa would not be facing decimation at the hands of AIDS. By now, LDN would again have become a generic drug.

These are the issues that I would like to get across to the public and to our legislators. My book and my story serve only to give me some patina of authority which I otherwise completely lack.

Since LDN has been used effectively for over 20 years to treat MS with no adverse side effects reported whatsoever, I suggest that people consider taking it. They have nothing to lose and everything to gain. My experience is not an "anecdotal" fluke. The numbers that have been gathered show that LDN is effective in halting MS progression and preventing relapses in 80% of the people who take it.

To all my fellow sufferers here online, I wish you all a recovery as complete as mine was. Progressive MS patients finally have an option to save themselves, and this is truly a cause for great rejoicing. All you need to do to find out all the information you need is to do as the title of my book suggests, Google "LDN Naltrexone". Thousands and thousands of sites to choose from. Start at the number one site in the Google listing if you haven't started at my book's site.

Warmest,

Joseph Wouk

Can a moderator delete this

June 19, 2009 by Anonymous, 23 weeks 3 days ago
Comment: 37394

Can a moderator delete this quack's shameless drivel? This is a science blog afterall.



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